Jesy Nelson has shared an emotional update with fans, revealing that her baby twins have been diagnosed with a rare and potentially fatal genetic condition.
The Little Mix alum took to social media to open up about the health battle facing her daughters, Ocean Jade and Story Monroe, whom she welcomed prematurely with partner Zion Foster last year.
Full story below…
In a tearful video, the singer revealed that her twins have been diagnosed with SMA Type 1, the most severe form of Spinal Muscular Atrophy, a muscle-wasting disease that impacts breathing, swallowing, and movement.
She said:
“If it’s not treated in time, your baby’s life expectancy will not make it past the age of two.”
Nelson explained that early concerns were first raised by her mother after noticing limited movement in the girls’ legs. Following months of appointments and assessments, doctors confirmed the diagnosis.
“After the most gruelling months, the girls have now been diagnosed with a severe muscular disease.”
The former chart-topper shared that Ocean and Story have since received urgent treatment, which she says was life-saving.
“If they don’t have it, they will die.”
Within the full video, she unpacks the urgent need for early detection via a method (heel prick test), which she alerted s not available at birth as standard in the UK. Nelson also fessed to feeling like her life has “done a 360,” and she has had to “mourn” the life she anticipated having with her daughters.
Watch the emotional address:
View this post on Instagram
Since sharing her story, the star has been met with an outpouring of love and encouragement across social media, with fans and fellow artists rallying around her family.
Flop! She is curse like Normani 💅🏼die b I t ch
Ewww dude relax these are babies
Sending health even though I’m not a fan
What a loser to attack a mom that is sharing a heartbreaking time in her life. These are innocent babies.
Okay this is too far. Admitted Nelson has made a fool of herself in the past and been racist, her babies are innocent and they’re babies. Its mega low class and disgusting to attack innocence in this way.